Running The Coast For A Cure: One Man's Journey For His Niece With Sturge-Weber Syndrome

$14.99
by Al DeCesaris

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An extraordinary and inspirational journey to make a difference!In 2014, Al DeCesaris set out on a 1,935-mile solo run from Lubec, Maine to Key Largo, Florida. He ran to bring hope to his 10-year-old niece Jenna who suffers with Sturge-Weber Syndrome, a rare and life-threatening neurological disorder. He ran to create awareness and raise funds for medical research so a cure can be found.For three consecutive months, he battled the rigors of the road, endured numerous injuries, encountered wild animals, and narrowly escaped getting hit by more than a few reckless drivers. Yet, he also experienced the generosity of strangers, had heart-warming interactions with families affected by this devastating disorder, and came to realize - with purpose, determination, and belief - even the seemingly impossible can be achieved.Running The Coast For A Cure is one man's journey to make a difference for his niece. Told with humor and warmth, Al candidly captures the adversity he faced and the joy he experienced as he ran close to a marathon a day through 14 states down the East Coast. His journey of love and hope will have you running with him, and leave you inspired. "I stand in awe of this book. A heartfelt and brave accomplishment of a hero running for his hero! A gem to be treasured." - Helene Neville (One On The Run), Author & World Record Runner " Running The Coast For A Cure isn't just a book. It's a mission. One man trying to help his niece by saving her life. Now who can't get behind that?" - Brad Meltzer, bestselling author of The President's Shadow "... an inspiring, uplifting, and amazing account of an uncle's love for his niece, and his willingness to perform tremendous feats of athletic prowess to help her.... Told with candor and warmth, the account of DeCesaris' journey is remarkable, and no one who reads this book will forget it." - Judge, 24th Annual Writer's Digest Self-Published Book Awards In each of us is the power to make a difference! This isn't just rhetoric. This is something I wholeheartedly believe, something I've observed time and again. So when the cause of Sturge-Weber Syndrome - the rare neurological disorder that afflicts my 10-year-old niece Jenna - was discovered, I knew it was time, my time, to help further the efforts to find a cure. I was determined to make a difference in Jenna's life and in the lives of all those suffering with this devastating disorder. Thus, on the heels of my 2013 cross-country bike ride, which I chronicled in my book, Crossing America For A Cure: A Bicycle Journey Of Inspiration And Hope , I began training for a new charity event - a solo athletic endeavor that would have me running close to a marathon a day through 14 states down the entire East Coast. I suppose I could have come up with something a little less arduous (no doubt, my legs would have appreciated it), but I wanted to do something unique and eye-opening to create as much awareness and raise as much money for Sturge-Weber research as possible. My plan was to run (walk ... and even crawl, if necessary) on average 22 miles a day for three consecutive months from Lubec, Maine to Key Largo, Florida. Picking up each day exactly where I left off the day before, I would cover every mile (every foot actually) down the coast. Now, it's no secret I've never been much of an athlete. And I didn't have the running experience that would lead one to believe I could accomplish something this ambitious. In fact, even though I planned to run close to a marathon a day, I'd never actually run a marathon. Still, I have something within me that I knew would make this seemingly impossible task achievable - purpose. My purpose is my desire to help my beautiful young niece Jenna live a better life. For her and because of her, I am inspired to fight Sturge-Weber Syndrome on her behalf. All profits from the sale of this book fund Sturge-Weber Syndrome research. Since 2006, Al DeCesaris has volunteered his time and dedicated his efforts to raising awareness and funds for the research and treatment of Sturge-Weber Syndrome, a rare neurological disorder that afflicts his niece Jenna.  In 2013, he bicycled solo 3,088 miles from Santa Monica, California to Ocean City, Maryland in honor of Jenna and subsequently published a book about his ride, Crossing America For A Cure: A Bicycle Journey Of Inspiration And Hope . In 2014, he took on another incredibly challenging endeavor, this time on foot. Running solo close to a marathon a day for three consecutive months, he covered 1,935 miles as he made his way from Lubec, Maine to Key Largo, Florida. Through his athletic endeavors, charitable events, and books, Al has created considerable awareness about the disorder and helped raise significant funds for medical research. His efforts have brought hope to his niece and those suffering with Sturge-Weber Syndrome and have inspired others to help those in need. To further the efforts to find a cure, Al is dedicating all p

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